Thursday, April 30, 2015

Ear Tubes for Toddlers.

So here's a post for any parents who are thinking about or waiting for their child to get tubes put in their ears - or a myringotomy.

Babe likely had some ear troubles as a baby and I just never figured it out. She was certainly fussy enough for it.

But when we moved up north (before Babe had turned two) and she started daycare she of course was launched into an endless barrage of classroom-caught illnesses. And when that happened the ear infections started.

One after another. After another.

That first fall/winter she had about six ear infections with not much down time in between and the emergency doctors told me at that point I might need to consider getting tubes put in her ears.

Then summer/spring came and the colds went away and so did the ear issues.

But we moved back to Vancouver, fall came around and she started preschool again and of course the ear problems returned. This time however it was clear that not only was she getting frequent painful ear infections, she also wasn't hearing well even when she was healthy.

Babe has always been super verbal but I began to notice that she was often mispronouncing new words. On top of that she just always seemed cranky, fussy...actually, down-right bitchy. I started to notice that if I called to her from another room she usually couldn't find me by following my voice. And I started to notice that she said "What?" A LOT and often only understood me when I spoke very slow and clear or when she was looking right at my mouth.

Between the constant ear infections which kept her out of school, to her constant irritability, to the risk to her development and safety I decided we really couldn't wait any longer to see if she would just outgrow the problem.

Getting the surgery done isn't easy. It usually takes a long time but I was very focussed on speeding up the process as much as possible for both Babe's sanity and mine (I was literally repeating almost everything four or five times).

The first step was getting Babe an appointment to have her hearing checked. Before this point I still thought maybe I was blowing things out of proportion and she was hearing better than I feared. I made an appointment for her at the North Shore Children's Hearing Clinic (you can refer your children yourself - HERE's THE FORM) and I don't remember how long the wait was but I think it was going to be a good couple months - actually, if I remember correctly I think she would still be waiting. But "squeaky wheel get the grease" and I was feeling desperate so I told them to put us on a cancellation list and we'd come in any time. Eventually they called with an appointment and I think in the end we only had to wait a couple weeks.

She went for the tests which were really simple. The staff were great with her and the tests were designed to be fun for kids. For example she had headphones in and every time she heard a beep she would drop a bite of plastic food into an bucket with a lion's mouth on it. She had a blast and nothing was invasive or painful at all.

When we got the results (at the same appointment) it was clear that Babe was in fact having a lot of trouble hearing.

After that I began asking Babe more direct questions about her hearing and she sometimes would say it sounded like fire in her ears or it was noisy in her head. I got my mom to stand a distance away and whisper things to see at what level it would be before Babe could repeat what was being said. She was definitely not hearing well.

So the next step was taking Babe and the hearing test results to a doctor to get a referral for an ENT. But again when when I called (two different ENT's I believe) I was told the wait lists to see them would be looong as well. And that even when we finally got in the door and were referred for surgery that we would likely have to wait six months to a year to get the tubes done. More discouragement. Not sure if it's true but one doctor's assistant told me the wait list for Children's Hospital would be about a year.

So once again I explained that my daughter was little and not only was she in pain quite often but she wasn't hearing any of the time and it was starting to become a safety concern and affecting her speech development.

The staff were great and they did find a way to squeeze her in within I think less than a week.

At the ENT appointment the doctor met with us, checked Babe's ears, listened to her history and symptoms and discussed with us the risks and benefits of the surgery. And that was it. I said I wanted to get it done as soon as possible and they gave us a surgery date for three weeks later at Lions Gate Hospital. We had the option of waiting until fall since kid's ears usually dry up in the warmer weather but I figured why put it off just to have it start to flare up again and then maybe not be able to get into surgery so quickly.

Her surgery was earlier this week. I was of course nervous about Babe being under anaesthetic but I was looking forward to getting Babe to a place where she felt better and could hear properly.

She wasn't allowed to eat or drink after bedtime the night before but her surgery time was very early the next morning so that wasn't much of an issue.

We had to arrive at the hospital at 6:30 am to check in for the 7:45 am surgery. The admitting staff were all amazing. The lady who got us settled and changed for surgery gave Babe a little teddy bear and a warm blanket. The nurse who came to fill out forms dressed her bear for surgery and made the blood pressure and pulse checks into a game.



We then met the ENT (same office, different ENT) and he went over everything that would happen again. And then the anesthesiologist came in to meet with us and reassure us that everything would be fine.



This was the only hard part: I have spoken to so many people who have taken their children to get tubes put in plus the regular doctors and our ENT and every one of them told me that the parent can stay in the operating room with their child and hold their hand until they are asleep. So right up until the anesthesiologist came in I was still under that impression. But I do remember from my own experiences that sometimes the anesthesiologist has a personal preference for putting someone under which may differ from what the doctor had said would happen. And for some reason I just had a hunch that I wouldn't be able to stay with Babe until she was asleep. Sure enough, the anesthesiologist said he preferred not to have the parent in the room when putting the child under. Because we were having the discussion in front of Babe I didn't want to make her nervous so I calmly agreed with him when really I wanted to argue and demand to be allowed to stay with my baby.

It worked out fine because I had been pumping Babe up for surgery for weeks. Telling her how lucky she was to live in a country where she can be able to have it done and how good she would feel afterwards. In the days before surgery I went over and over with her step by step what would happen and had explained it all right up to the mask going onto her face and her starting to feel sleepy.

When I found out I couldn't go in with her I was especially thankful that I had explained it all to her and made it sound like no big deal because otherwise I think my three-year-old would have been quite shocked to be taken away from me by strangers to a scary operating room.

Here is a video for prepping you child for surgery at Lions Gate Hospital. I didn't really find it helpful for Babe because she is still so little but would be good for an older child.

But I have to say all the surgery staff were great too. In fact, despite not letting me in the room the anesthesiologist was really good with Babe and continued on making the experience fun for her. He even piggy-backed her into surgery!

Then it was just waiting until she was awake. Which was nerve-wracking. But the time apart was only about an hour and most of that was just Babe sleeping it off. I believe the actual surgery was only twenty minutes.

Afterwards the ENT said her ears were so filled with a thick gluey substance that it kept clogging his sucker-thingy (he actually used a medical term for that equipment).



The rest of my notes come from Babe herself, so...you know:

Babe says when she got in the room she watched cartoons and then they put the mask on.

She says the gas smelled like doggy breath (pretty sure that was a description she heard from one of the doctors because we don't have a dog).

She says they put stickers on her arm (she did have stickers on her when I saw her next).

Babe also says the piggy back was fun and she doesn't remember feeling sleepy.


Pretty stoned after just waking up.

The nurse gave her a popsicle but at this point she's still too
high to remember what she is supposed to do with a popsicle.

When she woke up she was groggy and stoned but still seemed to be enjoying all the pampering from the hospital staff (might be a Munchausen Syndrome candidate later on if hospital trips continue to be this much fun).

The only time she cried at all was when the nurse removed the little IV tube in her hand - which they were kind enough to put in after she was asleep.

Take this popsicle and shove it!
Not liking the nurse after she took out the IV.

Has certainly perfected her Victim face.


There has been no dramatic "I can hear!" moment but I think that is because her ears were already starting to clear a little due to the weather. There have been a few times where she has commented that a sound was too loud where she never would have said that before. But she definitely isn't saying "What?" anymore.

She has antibiotic ear drops for the next few days but has felt no pain. In fact she was back to her old self a few hours later and back at preschool the next day.

As a thank-you we made a donation for new equipment to Lions Gate Hospital. And I think we'll take a card over for all the staff and her ENT. If you want to donate to Lions Gate Hospital, CLICK HERE.

Anyway, I hope our story helps if you are waiting to take your child in for a myringotomy or if it is something you are considering.

Now to invest in some good swimming ear plugs!

Happy little patient.


5 comments:

  1. Thank you for this!! My 18 month old is seeing an ENT at children's at the beginning of June and I have a feeling we are headed this route (I had tubes when I was 2 and 7). He just had a ruptured ear drum on the weekend and has had an ear infection once a month since November...

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  2. I had to push to get my son done at age 5, after numerous ear infections and 2 ruptured ear drums, and hearing loss both ears. Best thing I have ever fought for.

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  3. Thanks for this! We just saw an Ent and we were told to wait until August to see if dry weather helps clear up too.

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  4. Wow! Great write up! I work in the OR at LGH so its great to hear the patient's perspective! Im sorry you weren't given the option to come in the room. Like you said, most anesthesiologists are ok with it but some feel it is a hazard/potential distraction to patient care. But be certain that she was in good, caring, capable hands!

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  5. Just read and so happy it all worked out for you too I also had to ring A LOT to get pushed up waiting lists. I literally remember calling the ENT office who I was on the referral list for around the billionth time and breaking down on the phone as my baby was screaming in her seemingly constant misery. I don't think many weeks went by without me ringing up to enquire about cancellation appointments! I'm sure the receptionists at both the ENT clinic and children's hospital will be very glad not to have to hear from me again. hopefully not again that is!!!

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